Resource on Tourette's Syndrome

"Tourette de France" DVD

Keith Allen teams up with a group of teenagers from the Tourette Scotland support group, and travels with them to France on a red Routemaster bus. Led by John Davidson, the group's ultimate goal is to reach the Pitie-Salpetriere Hospital in Paris, to see for themselves the place where their condition was first diagnosed, back in the late 19th century. As well as debunking the myriad preconceptions about the syndrome, Keith Allen's Tourette de France looks at the humorous side of society's reaction to Tourettes. By turns funny and touching, it gives the viewer a rare insight into a group of normal, likeable, and occasionally mischievous teenagers who are managing to live fulfilling and rewarding lives, despite the bizarre hand that fate has dealt them. 'Tourette de France' attracted over 3 million viewers, elevating this programme to immediate TV Cult Status! This DVD includes the programme as seen on Channel 4 and the extras contain all the unseen bits that weren't!

 

"Tourette Syndrome: The Facts" by Mary Robertson & Simon Baron-Cohen

Tourette Syndrome: The Facts is written by a psychologist and a psychiatrist who have been researching Tourette's Syndrome for many years. The book explains the causes of the syndrome, how it is diagnosed, and the ways in which it can be treated. Essential reading for Tourette's sufferers, their relatives and friends, Tourette's Syndrome: The Facts will aslo be of use to clinicians, GPs, schoolteachers, and anyone seeking an accessible introduction to the disorder.

 

 

"Twitch and Shout: A Touretter's Tale" by Lowell Handler

Lowell Handler has Tourette syndrome. Although he is a successful and acclaimed photojournalist, Handler has often seen himself as an outsider - a social outcast. With courage and candor, he reacalls the difficulties he suffered growing up, the confusion he experienced when doctors misdiagnosed his bizarre behaviour as a psychological abberation, and finally how, restless and despairing, he embarked on a quest for answers.

In Twitch and Shout, Handler sets out, camera in hand, on a journey through less than savoury parts of America. From a transvestite bar in Tampa to a flophouse in New Orleans to a community health centre in New York, he meets a variety of people who, like himself, don't conform to the standards of a conventional society. With a keen eye for detail and an acute sense of humour, this memoir perfectly captures the unigue and unforgettable life of a Touretter.
 

 

 

"Why Do You Do That?" by Uttom Chowdhury

Written specifically for siblings of children with Tourette Syndrome (TS), "Why Do You That?" is an age-appropriate source of information for children and adolescents aged 8 to 16. Uttom Chowdhury and Mary Robertson describe tics and Tourette's in clear, child-friendly terms and provide a simple explanation of the biological causes. Other chapters focus on living with someone who has TS, associated features such as obsessive-compulsive disorder, attention deficit/hyperactivity disorder and aggression, and what siblings can do to help. The authors also offer practical tips on how to deal with issues such as problems at school and bullying. This book will prove invaluable for brothers and sisters of children with TS, as well as parents and other family members.

 

 

"Busy Body: My Life With Tourette's Syndrome"
by Nick Van Bloss

Nick Van Bloss was 7 years old when he had his first tic: a sudden compulsion to shake his head from left to right twice in rapid succession. It wsn't until 15 years later that he was diagnosed with Tourette's syndrome and he could comprehend the condition that had plagued him for so lonh. Amidst his battles with unhelpful medical professionals, jeering bullies, and his very own busy body, Nick managed to survive by discovering a gift and passion for the piano. Life, however, was still to throw a number of obstacles in his way before he could learn to accept his syndrome and wear his tics with a smile......Nick Van Bloss' memoir gives a remarkable insight into a much-misunderstood condition, and allows us into the heart and mind of a wonderfully witty and talented man.

 

 

 


 

"Hi, I'm Adam" by Adam Buehrens

Adam Buehrens is 10 years old and has Tourette Syndrome. Adam wrote and illustrated this book because he wants everyone to know he and other children with Tourette syndrome are not crazy. Adam tells this story from a child's viewpoint, how it feels to have the symptoms of TS when no one, including the author, knew why he was jerking, making noises and having temper tantrums. Adam relates the problems of getting a diagnosis, school problems, the side effects he had with some of the medications, and how he has now come to terms with his disorder. It is richly illustrated with pictures drawn by Adam to help demonstrate his feelings and those of the people around him. Hi, I'm Adam is written for children ages 4 to 14, whether they have TS or not. If your children have been diagnosed as having Tourette syndrome, this book will help them realise they are not alone.

 

 

"Tictionary" by Fred C. Engh (Foreward) and Becky Ottinger

This A-Z resource guide is for anyone needing information and common-sense strategies as they deal with the neurological disorders of Tourette Syndrome, Asperger Syndrome, attention deficit hyperactivity disorder and obsessive compulsive disorder. Written from both a parent and educator's perspective, the guide offers insights into the world of the children and families who deal with these disorders through factual information interspersed with both funny and sad stories. Helpful handouts and fact sheets, ready to be copied with the publisher's permission, are customized for the teacher, counsellor and other school staff, in addition to the family doctor, dentist, family members and others.

 


"Life, Interrupted: The Memoir of a Nearly Person" by James McConnel

James McConnel always felt like a 'nearly' person. Alienated and bullied at school, playing music was the only time James felt in control. But as his piano playing skills developed, so did a bewildering array of strange compulsions. Initially the jerking, coughing, grunting, repeating, tapping, sniffing and counting, was dismissed as a "funny little habit". But it was clearly much more than that. Growing up, he had dreams of becoming a concert pianist, and he secured a place at the Royal College of Music. But the bittersweet discovery that drinking temporarily stopped his twitches saw him slip into alcoholism. Aged thirty-two, James was finally diagnosed with Tourette's Syndrome and at long last, began to understand himself. He still has tics and obsessive routines but his attitude to these has altered dramatically. He is happy. Touching, humorous and intimate, "Life, Interrupted" is the astonishing story of one man's journey to self-acceptance.

 

"Tourette Syndrome: A Practical Guide for Teachers, Parents and Carers" by Amber Carroll, Mary Robertson

This handbook provides the knowledge and information required to equip teachers and learning support assistants with the understanding and skills needed when working with pupils with Tourette syndrome. Clinical descriptions and medical treatments are discussed and advice on diagnosis, identification and assessment in the classroom is given. Responding to the learning, emotional and behavioural difficulties pupils may experience, the authors provide multi-disciplinary strategies for application within a school.