Fife  Group

The Tourette Scotland Fife Support has a new venue for it's meetings.  They will be held at:

 

St. Ninian's Church

Allan Crescent

Dunfermline

KY11 4HE

From 7.30pm until 9pm.

The first meeting here is on 16th August 2017.

 

The following dates are booked at the Duloch Library in Dunfermline for the Fife Group meetings, from 7pm to 8.30pm:

15th February 2017

15th March 2017

26th April 2017

24th May 2017

21st June 2017

 

The Fife Group now has a list of dates and activities taking them through to 2017. 

Sunday 12th June - Noah's Ark bowing and gokarting

Wednesday 15th June - meeting at Duloch Library, Dunfermline

Saturday 2nd July - Kayaking & BBQ

Wednesday 17th August - meeting in Dunfermline

Wednesday 21st September - meeting in Dunfermline (to arrange something for the October break)

Saturday 29th October - Charity Night

Wednesday 16th November - meeting in Dunfermline

December - Bowling and Christmas Dinner

Pantomime to be discussed and arranged

Wednesday 18th January 2017 - meeting in Dunfermline

 

The Fife Group had an amazing day on Saturday, cycling/walking round Loch Leven - all 14.2 miles.  Adults, children, and dogs, enjoyed the beautiful sunshine, and raised awareness and funds for their group.  They had a well-earned picnic afterwards.  Hope you enjoy the photos which show just how much they enjoyed it - and hope that Stevie's sunburn heals soon. Well done everyone!!!

 

 

 

 
 
 
 
 
 
 
 
 
 
 

The next Fife group meeting will be on Wednesday 27th April 2016 (and not the 20th as expected). 

 

A happy follow-up to a recent item:

Abbie has now completed her 12 weeks training and has passed out with Police Scotland Youth Volunteers.  A good night was had by all, and many congratulations are sent to Abbie. 

 

 

The first meeting for 2016 for the Fife Support group will be on:

Wednesday 20th January 2016, at the Duloch Library, Dunfermline, from 7pm to 8.30pm.  Adults & children welcome.

 

Tyler is raising funds for the Fife Support Group by having a No Nibbles November. Read his story below.  Thank you Tyler.

https://www.justgiving.com/lana-shearer2/

 

 

 

In collaboration with Children in Scotland, three of Tourette Scotland's youngsters (one from Fife), met Brian Conoghan (author of When Mr Dog Bites), in Edinburgh.

They had a great time and were so interested in what he had to say.  They asked lots of questions.

Brian will meet more of his fans tomorrow when he goes to Dunfermline High School.

 

Last weekend the heaven's opened, but that didn't stop our Fife Support group going ahead with their annual BBQ at Lochore Meadows in Fife.  They had a great time on the water, kayaking and enjoyed their BBQ afterwards, with time to catch up with friends, old and new.  Below are some of the many photos taken on the day. 

Well done to Michelle and family, and Susan for making this happen. 

The next Fife support group meeting will be on Wednesday 26th August, at the Duloch Library in Dunfermline, from 7pm to 8.30pm.

 

 
 
 
 
 

A couple of days ago some members from the Fife Support Group braved the bad weather conditions to walk across the Forth Road Bridge, to raise funds for their group.  Everyone (including their mascot George) did really well, and by sounds of it, had a good time.  They have raised lots of money (amount to be confirmed when it is collected and added to the online donations), and have done so well in helping to raise awareness of Tourette Syndrome in Scotland.  Below are some photos taken on the day: - Thank you all very much.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

At the recent meeting some exciting things were organised for the next few months:

The March meeting is on the 18th March, and there will be someone there from Take a Break/Family Fund, to help fill out applications.  If you are a Tourette Scotland member you can take advantage of this.  If you are not a member, and want to be, please email info@tourettescotland.org to request a membership form.

Saturday 11th April 2015 is a walk over the Forth Road Bridge with George, meeting at the North Queensferry hotel car park at 2pm.

Update:  Please support Lana and Kyla, who are taking part in the Bridge walk on the 11th April.  Their JustGiving pages are:

www.justgiving.com/Lana-Shearer1

www.justgiving.com/Kyla-McDonald

Thank you.

April's meeting, on Wednesday 15th is CHILDREN only!!  Parents can go for a coffee.  If this is successful a day away somewhere will be arranged later on in the year.

Saturday 2nd May 2015.  Bag Packing at Morrisons, Glenrothes.  Time to be arranged.

Saturday 4th July 2015.  Kayaking & BBQ booked.  This year, the Fife group are extending an invitation to all the other support groups to join them for the BBQ.  This will be a good opportunity for everyone to get together.  Details and more information to follow.

If anyone wants more information about Fife meetings please email info@tourettescotland.org 

 

Dates for your diaries for 2015:

Meetings to be held at the Duloch Library, Dunfermline on the following dates, normal time of 7.00pm to 8.30pm.

21st January 2015

18th February 2015

18th March 2015

 

The Fife Group will be having their Xmas meal on Sunday 7th December 2014 in Dunfermline.  It is going to be well attended and everyone's looking forward to it.

 

The next Tourette Scotland Fife group meeting is on Wednesday 17th September at the Duloch Library, Dunfermline, from 7pm to 8.30pm

 

Below are some date for 2014 for the Fife Group, and also some photos taken at the recent activity.  A good time was had by all!!

5th July 2014 - Kayaking and BBQ.  9.45am for Kayaking and 12 noon for the BBQ.  The Kayaking is now FULL but everyone is welcome to join in at the BBQ from 12 at the Meedies, but Michelle and Susan need to know numbers in advance, so that they have enough rolls!

Dates for meetings:  20th August, 17th September, 15th October.

Hoping to go to Noah's Ark in the October break - arrangements to be finalised.

Bowling and Christmas meal 2014 - new venue this year - to be checked out and organised nearer the time.

Pantomime is booked for January 2015 - oh yes they are!!

Other exciting suggestions and ideas in the pipeline for the Fife Group, and they also have their own Facebook page - but please note this is only for Tourette Scotland Fife members so don't be upset if your request to join is refused.

 

 

 

 

 
 
 
 
 

Some dates for diaries.  Please email info@tourettescotland for more information.

Saturday 3rd May - Walk with George over the Forth Bridge (weather permitting)

Saturday 31st May at 2pm - Absailing or Ariel Assault Course.

Saturday 22nd June - Challenge Scotland sponsored walk to raise funds for group.

Saturday 5th July - 10am to 2pm  Kayaking & BBQ.

 

The Fife group's next meeting is on Wednesday 19th February 2014 at the usual venue in Dunfermline - Duloch Library - from 7pm to 8.30pm.  All welcome.

 

Get your diaries out people, and take note of meeting and events dates between October 2013 and January 2014 for the Fife Group!!

Tuesday 15th October at 2pm:  Bowling & Karting at Noah's Ark, Perth.

Wednesday 16th October: Group meeting at Duloch Library in Dunfermline, from 7pm to 8.30pm.

Sunday 2nd November:  Disco to celebrate 5th birthday for the group.  To be held in Falkland, for more details contact Michelle, or email info@tourettescotland.org

Wednesday 20th November:  Group meeting at Duloch Library in Dunfermline, from 7pm to 8.30pm.

Sunday 8th December:  Challenge Scotland fun walk and run in Edinburgh.  For more information contact info@tourettescotland.org

Sunday 15th December:  1.15pm Bowling at Bowlplex Dunfermline

                                        2.45pm Christmas meal at Crooked Glen

£5 per adult, to pay on the day.  Please let Michelle know asap or email info@tourettescotland.org

Saturday 4th January:  Pantomime at Adam Smith Theatre, Kirkcaldy - The Little Mermaid - 1pm.  (This is a big expense, so if people book, and don't come on the day, you will be charged the price of the ticket(s).  Please let Michelle know names, and how many tickets asap, or email info@tourettescotland.org

 

 

The next Fife Support Group meeting is on Wednesday 18th September 2013 at Duloch Library, Dunfermline, from 7pm to 8.30pm.  Michelle & Co would love to see some new faces, and you would be very welcome.

 

DUE TO DISAPPOINTING WEATHER, THE FIFE GROUP PICNIC, SCHEDULED FOR SUNDAY 18TH AUGUST HAS BEEN CANCELLED.  EVERYONE WILL BE NOTIFIED OF AN ALTERNATIVE ACTIVITY IN A FEW WEEKS.

 

The next get-together for the Fife Group will be on Sunday 18th August.  If you want to come along to Silversands, Aberdour, please bring your own picnic with you.  They are meeting from 1pm - 4pm.

The next Dunfermline meeting is on Wednesday 18th September from 7pm to 8.30pm.

 

Some nice photos of the Tourette Scotland Fife Group taking part in their first Walk of 2013 over the Forth Road Bridge recently.  There was lots of cuddles and photos for George, who is getting quite famous now, and money was donated via collecting tins for the group.  There will be another Walk when the weather gets warmer.

 

 

 

 
 
 
 
 

 

Our Legal Advisor will be attending the meeting on Wednesday 17th April 2013 to offer advice/signpost anyone who is having TS related issues/problems.  Please let us know on 01738 646742 if you are planning to attend, or email info@tourettescotland.org Meeting will be at the Duloch Library, Nightingale Place, Dunfermline from 7pm to 8.30pm.

 

 

 

 

The Fife Group will continue to hold their monthly meetings on the third Wednesday of the month at the usual venue, the Duloch Library in Dunfermline.  They will run from 7pm to 8.30pm and everyone is welcome.  They have lots of plans, activities, fundraising organised for 2013.

Dates of future meetings:

20th March;   17th April;   15th May;   19th June.

If anyone fancies going for a bracing walk over the Forth Road Bridge with George (the mascot) on the 20th April - please meet at The Queensferry Hotel car park at 1.30pm.  Everyone welcome.

The popular annual event of Kayaking & BBQ will be on the 29th June this year.  Kayaking is fully booked but if anyone wants to attend the BBQ afterwards (from 1.30pm), they will be welcomed.  Bring your own meat along - rolls and drinks will be provided by the group.

 

The next meeting will be held on Wednesday 21st November 2012 at the Duloch Library, Nightingale Place, Dunfermline KY11 8LW from 7pm to 8.30pm.  There will be a talk from someone from Family Fund. All welcome.

Meetings will be held at the above venue from now on, on the third Wednesday of every month.

The group will be meeting on Saturday 8th September to walk over the Forth Road Bridge, with their mascot George, to raise awareness.  Meeting at the Queensferry Hotel  at 2pm.  All welcome.

 

 

Michelle says:

"This year the Fife Group decided to have their annual BBQ and kayaking on the last Saturday in June, rather than September, in the hope the weather would be a bit warmer.

The day arrived and yes, we had blue skies although in the distance we could see a few dark clouds.  This year, with more families joining in we had more on the water than ever - a few dads and a mum as well as 12 youngsters.

All braved Loch Ore.  As the water was choppy the group decided to go out in the power boat after splitting into two groups, build a raft, and race back.  During the two hours we did have a few heavy showers but that only added to the fun.  Once back it was jumping in from the Pier.  I'm sure this is the highlight of the day!  While this big group got showered a dried, Steve was already over starting the BBQ with Susan and Kenny putting the gazebo up.  And what a feast we had!  Chocolate strawberries and the fab coleslaw, as well as great burgers.  We did have a couple of showers but nothing dampened the day.  It was so good seeing the youngsters running around having fun at the park as well as playing games, and a fantastic day for all the parents and families having time to talk and enjoy the company.

Forty five people came along and made this a great day.  The only sad thing was that George couldn't manage, but he has promised to attend our 'fun September' (watch this space.....what are the Fife group planning next?).

Thank you to everyone for making this a special day for our Fife Group."

Michelle.

 

The Fife Group will be having their BBQ and kayaking event on the 30th June.  For details please contact the national office on 01738 646742 or info@tourettescotland.org

The next meeting will be on Wednesday 20th June from 7pm to 9pm in Dunfermline.  Details from the national office on 01738 646742 or info@tourettescotland.org

 

Meet George - Fife Group's new mascot. 

 

 

 

George took part in the sponsored walk across the Forth Road Bridge on the 2nd and 3rd June and helped to raise awareness, as well as over £200.  They had to keep stopping to have photographs taken.  They had a good turnout on the day, with new members coming along to join in the fun.

Due to all this successful fundraising (including a large donation as a result of recent bag packing), the group will shortly be booking a well deserved weekend treat.

 

The next meeting is on Wednesday 20th June 2012 at the Dell Farquharson Centre in Dunfermline, from 7pm to 9pm.  The usual warm welcome and support for Fife members.

The Group have two events lined up for June.  The first is a sponsored walk over the Forth Road Bridge on Saturday 2nd June and also on Sunday 3rd June.  If you can make it, meet at the Queensferry Hotel car park at 2pm (on both days) - fancy dress - all welcome.

The second event is a BBQ and Kayaking day.  This is on Saturday 30th June.  Anyone wishing to attend to let us know first, so that the co-ordinators know how many to cater for.  Bring your own meat to the BBQ, everything else will be supplied.  Kayaking starts at 11.30am, BBQ from 1.30pm.  To find out more information please phone 01738 646742 or email ruth@tourettescotland.org

 

Abbie Steggles recently ran across the Forth Road Bridge, raising £100, accompanied by Caitlin and Paul.  Well done to all, and thank you.

 

 

 

 

The co-ordinators of the Fife group are Michelle Ross and Barbara McGrouther.  They have organised a number of outings for the group and also very successful fundraising events.  Phone 01738 646742 if you want to know more about the group.

Article from Dunfermline Press

Track helps Tourette's schoolgirl turn her tics into triumph

A Dunfermline schoolgirl has turned her tics into triumph - thanks to the track.

At eight, Abbie Steggles (11), started showing signs of Tourette's Syndrome, which causes her to have involuntary vocal tics such as being abusive, squealing and making animal sounds.

A diagnosis is 2010 came as a double blow to parents Michelle and Stevie, as Abbie's older brother, Robbie, now 14, also has the condition, which is manifested in facial tics.

Due to Tourette's, Abbie - who also has Attention Deficit Hyperactivity Disorder (ADHD) and moderate hearing loss - has been mistaken as an abusive or rude 'naughty child'.

But she's now found the one thing that helps keep her calm and focused: running.

The Primary 7 pupil is in Pitreavie Primary School's running group and on Sunday ran across the Forth Road Bridge to raise £200 for the school and the Fife Tourette's Group.

Mum Michelle said "When she was diagnosed, it came as a surprise, although Robbie had it.

"We noticed she starting having the same traits, she started shouting, and ADHD showed up.

"Robbie can keep his in, because he's slightly older, but Abbie is still young.

"It waxes and wanes; you get really quiet periods and it resurfaces.

"She can be abusive, quite excitable, aggressive and shout out random words.

"She can get up in the morning and can be screaming and can have meltdowns at school.

"She also has thought tics, which are horrible - basically her brain is in over-drive and she could be thinking negative thoughts and worrying about things that are never going to happen."

But for the past two years, Abbie's found an outlet through running and trains a total of four times a week.

She runs with her school group and the Fife Athletic Club, which she joined seven months ago, and especially enjoys cross-country.

Michelle said, "We were trying to find things that would get her out.

"We knew it would be good to get her something to focus on and she always wanted to run.  It's really made a difference.  If she doesn't run, she gets really distressed and angry.

"When she runs, she's relaxed and doesn't have a tic.  When she comes off the track, she'll tic."

Michelle underlined that Tourette's isn't a 'swearing disorder', saying, "Many people think it is but everybody's tics are different.  Abbie does swear but Robbie doesn't.

"She likes to touch things but it's just a tic.  You can tell her not to do it but she will, it's a compulsion."

Michelle admitted Abbie has said some "really embarrassing things" but most people have been understanding once she explains Abbie has Tourette's or shows their Tourette Scotland card.

She said, "Abbie knows she has Tourette's and sometimes she's not even aware she's doing it.  It comes out before she can control it.

"She's been in the Kingsgate and shouted, 'Bomb!' and she's been in Asda and yelled, 'I'm a shoplifter! And she's told people, 'You're fat!'

"People have confronted us - 'She shouldn't get away with that, that's disgusting' - but I don't rise up to it.

"The worst one was on a train, there was a black family and she was very abusive.

"We've had to deal with people's prejudices - people don't know how to take it because she looks and acts normal."

Yet Abbie's schoolmates have taken it all in their stride - she does swear in class but Michelle said they've learned about Tourette's, accept her and 'don't make a big deal of it'.

Abbie has also made many friends through running and Sunday's run will buy new tops for the school's running group.

"Michelle smiled, "When the group runs they have to wear football tops.

"She wants to be an audiologist because of her hearing loss and she wants to help people.

"She's fabulous and caring and we're so thankful that we found an outlet for her." 

  

 

                     

How about this for a nice photo!  Abbie and Robbie were recently interviewed by Bryan Burnett for Radio Scotland's Children in Need show.  They had a great time and Abbie was interviewed whilst doing her favourite thing - running - keep up Bryan! 

 

To listen to the interview click here

 

We are always pleased to support Children in Need, who have funded us so well over the years.  Because of them we have been able to have camps and numerous activities to bring children and families with TS together.